This is very much going to be a personal look at this past year rather than looking at all that has happened in the wider world. I hope you can forgive me for not mentioning the bigger picture things that have made this a difficult or horrendous year for thousands of people. I also want to say that I am aware how privileged and blessed we are in many many ways, so if all this sounds indecorous to you, I apologise. Right, with all the caveats out the way, let’s get into it shall we?
This year has been one for the books for the Dinsmore clan. We have learned how to shout for help where we need it and put in a lot of work to get it. This year we have applied for and received: Caleb’s Autism diagnoses (private and NHS), his EHCP for school (Education and Health Care Plan. Our application was rejected initially so we took it to mediation and got the decision overturned), DLA (Disability Living Allowance), and Carer’s allowance. These applications involved reams and reams of paperwork, hundreds of emails, many appointments, and a shedload of my time. Stepping into 2024, it’s a relief to have these big ticket things crossed off our to-do list. They have provided support for Caleb in school and have provided us with financial support, which we have really needed at points this year. It was a heck of a lot of work but I’m glad we’ve done it.
Bethany and Lily started preschool this year and Caleb moved from his preschool to his (second) school in September. This has meant that I have had the luxury of time to myself a couple of mornings a week and Sam and I have often had Friday mornings together. It has made a huge difference from the extra year of having Caleb out of school where all three kids were often at home all day. Don’t get me wrong, I love my kids and I love spending time with them. However, I also enjoy (and need) time to myself to get jobs done, clear my head, and flop. In recent weeks when Caleb hasn’t been in school as much as normal, I’ve found the lack of time to myself keenly, so I know it’s an essential thing for me.
I wish I could say that we were stepping out of the survival mode we have found ourselves in for most of this year, but that would be a lie. Caleb is still only doing short days at school, there are still struggles in that area, big emotions, sibling relationships, and the general chaos of life to deal with. Maybe all families with young children feel constantly in survival mode. Do you? I’ve heard life with kids aged 5 and under being described as being in the trenches, and yes, the war metaphor feels accurate.
The word I have used most often to describe life this year has been chaos. Both mentally and actually. Life can often feel chaotic when you’ve got laundry overflowing, forms that you’re filling in, emails that you’re chasing, and little people you’re trying to keep alive and happy, let alone maintaining your own adult relationships and sanity. You can feel like you’re coasting for a while but you’re teetering on the edge of a cliff and something as tiny as running out of bread can send you spiralling into the chaos zone again. Daily I find myself looking skyward and asking God to help me, which He does, if only to remind me that He’s with me through it all.
One thing I find the most challenging about our life is the unpredictability of emotions from all the kids, but especially our eldest. You can feel like you’re treading on eggshells a lot of the time as you never know how what you say or do will land. It’s pretty exhausting for all of us, but of course especially for him as he is often not in control. Whilst there have been many wonderful moments this year, I have often found myself holding my breath in sheer anxiety as we face challenges each day.
Another challenge is the mental load of being a parent! There was one moment just a couple of months ago that brought into sharp focus the weight of this load. I was getting the girls back into the car after seeing a doctor about Lily’s eczema when I got a message about a medical appointment for Caleb, whilst simultaneously my mind was ticking over whether I should book a doctor’s appointment for Bethany because her cough had been going on a bit too long. I sat in the driver’s seat, felt the overwhelm and took a breath. Then I reminded myself of something that I often have to remind myself of. “I’m finding this hard because it’s hard.”
It’s hard because it’s hard. It’s not hard because you’re a bad parent. It’s not hard because your kid’s a bad kid. It’s not hard because Mercury is in retrograde. It’s not hard because you’re doing anything wrong. It’s hard because it’s hard. Does reminding myself of this make it all any easier? No, of course not. But it helps me give myself grace. It helps me to validate my feelings and to recognise that that’s all they are. Feelings, not facts.
All this to say, if at times your life feels chaotic, if it ever all feels too overwhelming and hard, I get it. I feel it. You are not alone in it and I guarantee that the thoughts you’ve had have been thought by countless other parents and people.
As we leave this year and step into a new one, I’m keenly aware that I need to deal with the stress of being a parent, especially a parent to a child with additional needs, better than I currently do. How do I currently deal with it? Chocolate, doom scrolling, crying, Haribo and wine. The crying will be here to stay as that’s a healthy way to deal with things. The excess sugar is less so.
I’m already trying a few things to help myself manage the stress a bit better. One thing is trying to get myself up before the kids are awake. Just that half an hour or so in the quiet with God at the beginning of the day sets me up for a much better day. I’m also trying to be more aware of the things I consume, be that content on social media, food, drink or the books I’m reading. There is always a choice in what I let in, so I am striving to be a better gatekeeper of my mind, heart and body.
The stress of being a parent isn’t going away any time soon, and next year holds the potential for many positive things, but also many stressful things too, like every year. So come journey with me on this path of seeking how to stress less and hopefully in turn be the mum, wife, friend and person I want to be more of the time. (Not all of the time, I’m not expecting miracles, but more of the time).
Thank you so much to those of you who have been reading my blog posts. Getting back into writing this year has brought me so much joy.
Wishing you all a wonderful Christmas and a joyful New Year.